Family Picture

Family Picture

Wednesday, May 4, 2011

The One With The First Diagnosis

So we got out of the hospital Friday, April 8th. It was a pretty good feeling, I hate the hospital, obviously we are more comfortable being at home. We spent most of the weekend at home with Preslie and Parker, trying to catch up on sleep and taking way too many rectal temperatures - seriously I feel bad.

Saturday morning we went in for a follow up with Dr. Lanuza, our pediatrician. She said Preslie seemed to be getting better and that she seemed to have a bit of a cold, but it wasn't a big deal. She also told us to follow up and get some blood tests done before we met with Dr. Rand, the Pediatric Infectious Disease doctor. She also put Preslie on 10 days of Augmentin to help clear up any remaining virus/bacteria that they had.

Monday the 18th Preslie finished the 10 days on antibiotics. Tuesday at 9pm she already had a fever. I called the pediatrician, she said we had to treat Preslie now and not her temperature because her temperature had been all over teh place. I said she didn't look great, but didn't look like she was going to die. So then we called the Infectious Disease doctor, his nurse told us to go in and get blood tests done and they moved the appoitnment up to that Friday.

Thursday we went in and got her blood drawn, I felt bad for the poor little girl. It is so sad that she is constantly getting poked and prodded. She sees anyone in scrubs now and she cries. She screamed bloody murder the entire time they were taking the blood. But good news, the phlebotomists at St. Luke's in Meridian are awesome and know how to hit a vein the first time, which I appreciate.

Friday we went in to meet with Dr. Rand. He is a freaking genius! Like seriously, he had an entire wall of degrees and accomplishments. It was insane. I wrote a few of them down even.

He went to the University of the South - which is a Catholic school that is ranked in the top 20 schools in the world. He then graduated from med school at Vanderbilt. Got his PHD in philosophy from Vanderbilt, got a second PHD from University of Washington School of Medicine, did his residency at Cinicinatti's Children's Hospital and a fellowship at Boston Children's Hospital. And these are just a FEW of his accomplishments. I felt very relaxed with him taking care of Preslie.

He told us he hadn't gotten all of the blood tests back, but he had gotten the most important ones back - the ones with her immunoglobulins. He said they looked good. He did a full physical. And then said he felt comfortable with the idea that she had a very overactive autonomic nervous system. The Autonomic nervous system controls automatic bodily functions - respirations, temperature, blood pressure, heart rate, etc. 

He looked at me and said, "You don't look very comfortable with that" and I told him I wasn't, that I trusted him, but it just seemed crazy that a little girl who has been sick her entire life has a perfectly functioning immune system and yet has all these issues. But we took his word for it, I mean, he is the doctor.

He said he would call the next week with the rest of the results from the tests, but he felt confident we were only dealing with an overactive autonomic nervous system, and that she would grow out of it eventually.  

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